Day 38

Hi Everyone,

  Hope you all had a nice weekend. We had a busy two days. We packed up majority of the house and are ready to move back to Kapolei. I didn't spend much time at the hospital this weekend. Today we visited Charlie for lunch in the cafeteria. Little Charlie was happy to see his daddy and got to spend a good hour with him. This is really hard on Charlie not seeing little Charlie. We have to stay encouraged and know that this is only temporary.  Charlie is still not feeling that great. He still has an outbreak of an acne like rash on his head and face. They have been giving him benedryl, but doesn't seem to help much.  Charlie is feeling a little down, but still has an amazing attitude. His body is going through so many changes that it can be very self conscious at times. We are praying for good news this week in hopes that one of the boys are a match. Please continue to pray for that. Charlies counts are still very good and haven't gone down too much. He has approximately two weeks left in the hospital and is ready to go home already. We are starting to plan for his transplant and are starting to get an idea of what all is involved.We are so thankful for all of you that are helping us fund raise for this. We are looking forward to the spaghetti night at Macaroni Grill. We are all sold out of tickets! Thank you to all of you who have bought tickets and donated. We also have another fundraiser going on in the mainland. Charlies cousin Sara is going to be having an auction/raffle event in San Francisco. We are collecting items for this event and if any of you have anything that you would like to donate please let me know! We are so thankful for all of you! Please pray for Charlie tonight that he will be a little more comfortable and be able to get some much needed rest. We pray that his rash will subside and the swelling in his face and head will go down. We love you all! Until tomorrow, Good night.