Hi Everyone,
I have been slacking on the blog! I wish I could keep up a little more, but things have been busy. Charlie has been home from the hospital since Thursday and has been doing ok. He has a cough that won't go away and can't catch any relief. Charlie has been very frustrated and would like just one day of relief. He is such a strong person and hanging in there. We are hoping that the City of Hope will call soon. Charlie does not want to go back for another round. This time they left Charlies PICC line in and has to flush it every 8 hours. It's pretty cool how the line works. Not too many updates at the time. We are just praying for that call and the perfect match. Please pray for Charlie and encouragement for him at this time. I will try to write more than I have been. Have a great Monday!
Sunday, August 28, 2011
Monday, August 22, 2011
Day 74
Hi Everyone,
I am so sorry for not writing, but these past days have been so hectic. I'm sure some of you have been worried. Charlie is doing good. He is now done with this round of chemo and is waiting now for his counts to go up. He is expected to be in here for another week. He has gotten updates about the possible bone marrow donors and could know if one is a match with in the next two weeks. Charlie is hanging in there and is doing the best he can. This is a short post, but will write more later. Good night
I am so sorry for not writing, but these past days have been so hectic. I'm sure some of you have been worried. Charlie is doing good. He is now done with this round of chemo and is waiting now for his counts to go up. He is expected to be in here for another week. He has gotten updates about the possible bone marrow donors and could know if one is a match with in the next two weeks. Charlie is hanging in there and is doing the best he can. This is a short post, but will write more later. Good night
Thursday, August 18, 2011
Day 70
Hi Everyone,
It's day 70 and it's almost the weekend. Tomorrow is little Charlies 1st birthday! I still can't believe he is going to be 1. Where has the time gone?? I have tomorrow off and will hopefully be bringing little Charlie to the hospital. We will see if Charlie is feeling ok and up to visit. Charlie is doing a little better today. He did have several vomiting episodes, but had an appetite tonight. He enjoyed some chicken long rice and lau lau for dinner and finished it with some chocolate ice cream. Hopefully his stomach agrees and can keep it down. Today Charlie had his interthecal procedure done and was the last one for this round. Charlie has one week left of chemo, and then one week of recovery. Right now we are praying for a perfect match to be found and hoping that a transplant is near. Charlie has been hanging in there and would really like the chemo process to be over. Please keep praying for him and for God to lay his healing hands upon him. We have faith and hope that his transplant will be soon. Thank you for the encouragement and uplifting words, we love you all!!
It's day 70 and it's almost the weekend. Tomorrow is little Charlies 1st birthday! I still can't believe he is going to be 1. Where has the time gone?? I have tomorrow off and will hopefully be bringing little Charlie to the hospital. We will see if Charlie is feeling ok and up to visit. Charlie is doing a little better today. He did have several vomiting episodes, but had an appetite tonight. He enjoyed some chicken long rice and lau lau for dinner and finished it with some chocolate ice cream. Hopefully his stomach agrees and can keep it down. Today Charlie had his interthecal procedure done and was the last one for this round. Charlie has one week left of chemo, and then one week of recovery. Right now we are praying for a perfect match to be found and hoping that a transplant is near. Charlie has been hanging in there and would really like the chemo process to be over. Please keep praying for him and for God to lay his healing hands upon him. We have faith and hope that his transplant will be soon. Thank you for the encouragement and uplifting words, we love you all!!
Wednesday, August 17, 2011
Day 69
Hi Everyone,
We are half way through the week and it marks week one for Charlie. Today is also his baby brothers birthday. Happy Birthday Jeff! We went to dinner tonight at a Mexican place in Koolina and had a good chocolate haupia pie at home. It sucked not having Charlie with us, but he will be home soon. He has two weeks left on the hospital. He is feeling much better today, but still feels sick and blah. His PICC line got unblocked and is working well now. He is hanging in there and is doing the best he can. This is just a short update, but will write more tomorrow. Have a great night!
We are half way through the week and it marks week one for Charlie. Today is also his baby brothers birthday. Happy Birthday Jeff! We went to dinner tonight at a Mexican place in Koolina and had a good chocolate haupia pie at home. It sucked not having Charlie with us, but he will be home soon. He has two weeks left on the hospital. He is feeling much better today, but still feels sick and blah. His PICC line got unblocked and is working well now. He is hanging in there and is doing the best he can. This is just a short update, but will write more tomorrow. Have a great night!
Tuesday, August 16, 2011
Day 68
Hi Everyone,
If there is one thing that I've learned in life, it's that life is not fair. Charlie is fighting the biggest battle of his life right now and it breaks my heart. I hate seeing someone I love so much in discomfort. I wish I could take away all of this pain and sickness. I have to say that I'm feeling sad today. I just have these moments where I feel the reality of it all and know that Charlie is very sick. Charlie is having a hard time with this round of chemo. These past two days Charlie has been very sick and umcomfortable. He hasn't been able to eat all day today and has had stomach discomfort for a couple days now. He still has fluid in his lungs which means he is not getting fluids through his PiCC line. He has been trying to drink water but feels very nauseated once he drinks. His PICC line is not cooperating right now as well. His line is blocked and is in the process of it getting unblocked as i speak.Please keep Charlie in your prayers. We are praying that the City of Hope calls soon and has a donor ready for Charlie. Please pray that he feels comfort and encouragement during these rough days. We love you all and thank you for the support!!
If there is one thing that I've learned in life, it's that life is not fair. Charlie is fighting the biggest battle of his life right now and it breaks my heart. I hate seeing someone I love so much in discomfort. I wish I could take away all of this pain and sickness. I have to say that I'm feeling sad today. I just have these moments where I feel the reality of it all and know that Charlie is very sick. Charlie is having a hard time with this round of chemo. These past two days Charlie has been very sick and umcomfortable. He hasn't been able to eat all day today and has had stomach discomfort for a couple days now. He still has fluid in his lungs which means he is not getting fluids through his PiCC line. He has been trying to drink water but feels very nauseated once he drinks. His PICC line is not cooperating right now as well. His line is blocked and is in the process of it getting unblocked as i speak.Please keep Charlie in your prayers. We are praying that the City of Hope calls soon and has a donor ready for Charlie. Please pray that he feels comfort and encouragement during these rough days. We love you all and thank you for the support!!
Monday, August 15, 2011
Day 66 and 67
Hi Everyone,
It's Monday and the beginning of another week. Charlie had a lousy day today. He woke up feeling very bloated and just a general blah feeling. He has a little cough and is still congested. This morning the doctor had him get a chest x ray done to check for possible pneumonia. The results came back with some fluid and was given some medicine to extract the fluid from his body. They arn't too concerned at this moment, but will keep an eye on it. Right now Charlie doesn't need pneumonia, he needs to be as healthy as possible. We are praying that the fluid and his cold will go away soon. Charlie was feeling really sick earlier. He threw up a couple times and didnt have much to eat today. Today just wasn't the greatest. They stopped his fluids right now until he gets his next dose of chemo tonight. Since his body is getting rid of all his fluids, he has been peeing like crazy. He has also been having pain in his kidneys and is taking morphine to control the pain. Please keep Charlie in your prayers and pray for Gods healing touch to be placed upon him. There are times that are discouraging, and today is one of them. We are trying to keep the faith and stay strong. We love you all. Have a great night!
It's Monday and the beginning of another week. Charlie had a lousy day today. He woke up feeling very bloated and just a general blah feeling. He has a little cough and is still congested. This morning the doctor had him get a chest x ray done to check for possible pneumonia. The results came back with some fluid and was given some medicine to extract the fluid from his body. They arn't too concerned at this moment, but will keep an eye on it. Right now Charlie doesn't need pneumonia, he needs to be as healthy as possible. We are praying that the fluid and his cold will go away soon. Charlie was feeling really sick earlier. He threw up a couple times and didnt have much to eat today. Today just wasn't the greatest. They stopped his fluids right now until he gets his next dose of chemo tonight. Since his body is getting rid of all his fluids, he has been peeing like crazy. He has also been having pain in his kidneys and is taking morphine to control the pain. Please keep Charlie in your prayers and pray for Gods healing touch to be placed upon him. There are times that are discouraging, and today is one of them. We are trying to keep the faith and stay strong. We love you all. Have a great night!
Saturday, August 13, 2011
Day 65
Hi Everyone,
Hope you are all enjoying your weekend so far. Today me and little Charlie went to a friends house and had a play date. He really enjoyed it and played well with the two girls. He is growing up way too fast!! Charlie is doing good today. He got a good nights rest last night and got some much needed sleep. He has been taking this round very well and will hopefully stay that way. He will start getting his Neuprogen shots on Thursday and will continue to get spinal taps every Friday. Right now we are playing a waiting game. We are hoping and praying this will be the last round of chemo for Charlie. He is hanging in there, but definitely wants to stop the chemo rounds. Not too many updates at this time. I want to thank everyone that reads the blog and prays for us. We really love and appreciate you all! Have a great Sunday :)
Hope you are all enjoying your weekend so far. Today me and little Charlie went to a friends house and had a play date. He really enjoyed it and played well with the two girls. He is growing up way too fast!! Charlie is doing good today. He got a good nights rest last night and got some much needed sleep. He has been taking this round very well and will hopefully stay that way. He will start getting his Neuprogen shots on Thursday and will continue to get spinal taps every Friday. Right now we are playing a waiting game. We are hoping and praying this will be the last round of chemo for Charlie. He is hanging in there, but definitely wants to stop the chemo rounds. Not too many updates at this time. I want to thank everyone that reads the blog and prays for us. We really love and appreciate you all! Have a great Sunday :)
Friday, August 12, 2011
Day 64
Hi Everyone,
It's Aloha Friday, no more work till Monday! Its finally the weekend. Charlie is doing good today. He didn't sleep much last night so he is feeling tired and ready for some rest. It's so hard to get rest at the hospital. There are constant interruptions and always seem to come in right when he falls asleep. Hopefully tonight he can catch a break. Charlie had his interthecal chemo done today and it went well. So far he is handling the chemo very well. We are still praying for a match for him. I was mistaken and said we would know in about 6 weeks. Charlie said there was no amount of time given. We are praying for good news and could come at any time. Right now Charlie is just hanging in there. He has good and bad days. All of this can be so scary and discouraging, but he is fighting this leukemia the best he can. Charlie is missing little Charlie, but will see him this weekend. I still need to post some new pictures. I promise I will when I get the chance. I hope you all have a great weekend! :)
It's Aloha Friday, no more work till Monday! Its finally the weekend. Charlie is doing good today. He didn't sleep much last night so he is feeling tired and ready for some rest. It's so hard to get rest at the hospital. There are constant interruptions and always seem to come in right when he falls asleep. Hopefully tonight he can catch a break. Charlie had his interthecal chemo done today and it went well. So far he is handling the chemo very well. We are still praying for a match for him. I was mistaken and said we would know in about 6 weeks. Charlie said there was no amount of time given. We are praying for good news and could come at any time. Right now Charlie is just hanging in there. He has good and bad days. All of this can be so scary and discouraging, but he is fighting this leukemia the best he can. Charlie is missing little Charlie, but will see him this weekend. I still need to post some new pictures. I promise I will when I get the chance. I hope you all have a great weekend! :)
Day 63
Hi Everyone,
Charlie is underway with his third round of chemo. He started it this morning and will continue to get it twice a day for 2 weeks straight. Charlie was very tired today. While he was home he didn't sleep that well. His body is just exhausted. We are really praying that his body tolerates this round well. He seems to have a feeling that he will be sick this time. Charlie is experiencing a sore throat at this time. He woke up last night feeling congested. I hope he is not getting a cold. That is the last thing he needs right now. Things are still the the same at this point. The doctors don't have much to say. We are playing a waiting game for the perfect match. Charlie is in good spirits but still doesn't like being in the hospital. Hospitals are no fun. Please keep Char in your prayers and for encouragement to conquer leukemia. Have a happy aloha Friday!
Charlie is underway with his third round of chemo. He started it this morning and will continue to get it twice a day for 2 weeks straight. Charlie was very tired today. While he was home he didn't sleep that well. His body is just exhausted. We are really praying that his body tolerates this round well. He seems to have a feeling that he will be sick this time. Charlie is experiencing a sore throat at this time. He woke up last night feeling congested. I hope he is not getting a cold. That is the last thing he needs right now. Things are still the the same at this point. The doctors don't have much to say. We are playing a waiting game for the perfect match. Charlie is in good spirits but still doesn't like being in the hospital. Hospitals are no fun. Please keep Char in your prayers and for encouragement to conquer leukemia. Have a happy aloha Friday!
Wednesday, August 10, 2011
Day 62
Hi Everyone,
Today was check in day for Charlie. He is now situated for his three week stay. Charlie was sad to go back today and didn't want to say bye to little Charlie. I hope these next few weeks go by fast! The nurses had some trouble getting his PICC line in, but finally got it. Charlie is in good spirits but is sad to be back in the hospital. The doctors didn't have much to say today. We will know more about the possible donors in the next six weeks. Please pray for good news! This is a short little post because my phone is going to die. I will write more tomorrow when I see Charlie. Good night!
Today was check in day for Charlie. He is now situated for his three week stay. Charlie was sad to go back today and didn't want to say bye to little Charlie. I hope these next few weeks go by fast! The nurses had some trouble getting his PICC line in, but finally got it. Charlie is in good spirits but is sad to be back in the hospital. The doctors didn't have much to say today. We will know more about the possible donors in the next six weeks. Please pray for good news! This is a short little post because my phone is going to die. I will write more tomorrow when I see Charlie. Good night!
Tuesday, August 9, 2011
Day 61
Hi Everyone,
Today was Charlie's last day of freedom. He will be checking in at the hospital tomorrow for his three week stay. He will have two weeks of straight chemo, and one week to recover. Today Charlie got a nice massage by a massage therapist that specializes in cancer care. He said it was relaxing and relieved some stress. His neck has been bothering him lately along with a daily headache. We are hoping that his body tolerates this round well and that he will be a little more comfortable. Please continue to pray for him. We are praying for a perfect match to be found soon. To our knowledge they are doing further testing on 4 possible candidates. Due to Charlie's cancer and his rare Philadelphia 22 chromosome, he must have a transplant. Our hopes are to have this be the last round of chemo for him. All we can do is pray! I will keep the updated coming and will post some pictures soon. Until tomorrow, good night
Today was Charlie's last day of freedom. He will be checking in at the hospital tomorrow for his three week stay. He will have two weeks of straight chemo, and one week to recover. Today Charlie got a nice massage by a massage therapist that specializes in cancer care. He said it was relaxing and relieved some stress. His neck has been bothering him lately along with a daily headache. We are hoping that his body tolerates this round well and that he will be a little more comfortable. Please continue to pray for him. We are praying for a perfect match to be found soon. To our knowledge they are doing further testing on 4 possible candidates. Due to Charlie's cancer and his rare Philadelphia 22 chromosome, he must have a transplant. Our hopes are to have this be the last round of chemo for him. All we can do is pray! I will keep the updated coming and will post some pictures soon. Until tomorrow, good night
Day 60
Hi Everyone,
It's day 60!! It's so crazy to say that it has been 60 days since Charlie was diagnosed and started chemotherapy. Charlie will be returning to the hospital on Wednesday for his third round of chemo. He is such a sport! This round will be just like the first. The thing Charlie hated about the first round was frequent unination. The drug regime makes him have to pee constantly and will make him a little sick. He's not looking forward to going back, but is ready to get it over with. We are praying that this will be his last round. If all goes well, he could possibly go two more times and then have a transplant. They are doing further testing on four possible donors at this time. Please pray for a perfect match! I know so many of you would like to help and be tested. There is a website called "Be The Match". This website you can sign up to be tested and you will receive a testing kit in the mail. All the test is a mouth swab. When you sign up for this please be serious about it. Being tested is not just for Charlie, but for others out there. You may be called to help someone else! If you feel like you would like to be a part of it check it out at www.bethematch.com. Hope you all had a great Monday and have even a better Tuesday!
It's day 60!! It's so crazy to say that it has been 60 days since Charlie was diagnosed and started chemotherapy. Charlie will be returning to the hospital on Wednesday for his third round of chemo. He is such a sport! This round will be just like the first. The thing Charlie hated about the first round was frequent unination. The drug regime makes him have to pee constantly and will make him a little sick. He's not looking forward to going back, but is ready to get it over with. We are praying that this will be his last round. If all goes well, he could possibly go two more times and then have a transplant. They are doing further testing on four possible donors at this time. Please pray for a perfect match! I know so many of you would like to help and be tested. There is a website called "Be The Match". This website you can sign up to be tested and you will receive a testing kit in the mail. All the test is a mouth swab. When you sign up for this please be serious about it. Being tested is not just for Charlie, but for others out there. You may be called to help someone else! If you feel like you would like to be a part of it check it out at www.bethematch.com. Hope you all had a great Monday and have even a better Tuesday!
Sunday, August 7, 2011
Day 58 and 59
Hi Everyone,
Yesterday was such a busy day that I was too tired to write the blog. Sorry! We celebrated Charlies first birthday and had such a fun day. Charlie and I cooked a Mexican feast with plenty of left overs. We had a full taco bar and enchilada pie. We ate a late lunch that it was an early dinner as well. We baked little Charlie's first birthday cake in the morning. It was a funfetti cake with the rainbow chip frosting. It was delicious, and my favorite :). Little Charlie didn't feel the same though. When it came time for cake he wanted nothing to do with it. He wouldn't even eat it! I think he was too tired and cranky. We will have to get him a cupcake to try on his actual birthday. Little Charlie got plenty of new toys and gifts. I was surprised that there were no duplicate gifts. He got a little farm, a toy car to push, golf clubs, a water pool stand and many more thing! He had such a good birthday and loved all his gifts. Charlie and I are so proud to be his parents and love him so much. We both can't believe a year has gone by already. It seems just like yesterday he was born.
Big Charlie is doing ok. While we were cooking yesterday his feet got really swollen from standing so long. He still has headaches and neck problems but is hanging in there. Today was the last weekend with Char until he gets out of the hospital. We decided to take a drive to the North Shore and spend some time together as a family, the three of us. It was a beautiful day, but very busy. On the way home we stopped at the Dole Cannery and enjoyed some soft serve of the pineapple made there. It was so refreshing, and little Charlie loved it. We are home now and are gonna going swimming in the kiddy pool. Hope you all have a great Monday!
Yesterday was such a busy day that I was too tired to write the blog. Sorry! We celebrated Charlies first birthday and had such a fun day. Charlie and I cooked a Mexican feast with plenty of left overs. We had a full taco bar and enchilada pie. We ate a late lunch that it was an early dinner as well. We baked little Charlie's first birthday cake in the morning. It was a funfetti cake with the rainbow chip frosting. It was delicious, and my favorite :). Little Charlie didn't feel the same though. When it came time for cake he wanted nothing to do with it. He wouldn't even eat it! I think he was too tired and cranky. We will have to get him a cupcake to try on his actual birthday. Little Charlie got plenty of new toys and gifts. I was surprised that there were no duplicate gifts. He got a little farm, a toy car to push, golf clubs, a water pool stand and many more thing! He had such a good birthday and loved all his gifts. Charlie and I are so proud to be his parents and love him so much. We both can't believe a year has gone by already. It seems just like yesterday he was born.
Big Charlie is doing ok. While we were cooking yesterday his feet got really swollen from standing so long. He still has headaches and neck problems but is hanging in there. Today was the last weekend with Char until he gets out of the hospital. We decided to take a drive to the North Shore and spend some time together as a family, the three of us. It was a beautiful day, but very busy. On the way home we stopped at the Dole Cannery and enjoyed some soft serve of the pineapple made there. It was so refreshing, and little Charlie loved it. We are home now and are gonna going swimming in the kiddy pool. Hope you all have a great Monday!
Saturday, August 6, 2011
Day 57
Hi Everyone,
Yayyy! It's Friday. Tomorrow we are having little Charlie's birthday party. It's hard to believe our baby is going to be one. Time is going by way too fast. I will definitely take pictures and post them on the blog. Today Charlie got an unexpected call from the City of Hope. This is great news. The lady who called is a coordinator for bone marrow transplants. They called to let Charlie know that there are four possible donors. Praise Jesus! We are so happy with this news. They are in the process now to do further testing and see if they would still like to donate. Please pray that at least one of them will be a sure match. We are so hopeful, but don't want to give our hopes up. Charlies doctor appointment went well today. He will be returning to the hospital on Wednesday and will be there for three weeks. Charlie is enjoying his time home right now and is not looking forward to going back. The news today about the donors make us more hopeful and encouraged. Hopefully he will be in California soon! Thank you all again for the love and support. Have a great weekend!!
Yayyy! It's Friday. Tomorrow we are having little Charlie's birthday party. It's hard to believe our baby is going to be one. Time is going by way too fast. I will definitely take pictures and post them on the blog. Today Charlie got an unexpected call from the City of Hope. This is great news. The lady who called is a coordinator for bone marrow transplants. They called to let Charlie know that there are four possible donors. Praise Jesus! We are so happy with this news. They are in the process now to do further testing and see if they would still like to donate. Please pray that at least one of them will be a sure match. We are so hopeful, but don't want to give our hopes up. Charlies doctor appointment went well today. He will be returning to the hospital on Wednesday and will be there for three weeks. Charlie is enjoying his time home right now and is not looking forward to going back. The news today about the donors make us more hopeful and encouraged. Hopefully he will be in California soon! Thank you all again for the love and support. Have a great weekend!!
Friday, August 5, 2011
Day 56
Hi Everyone,
Im so happy that tomorrows Friday. We are so excited for little Charlie's birthday party on Saturday. Tonight we went out and bought all of the food. Me and Char are cooking a mexican feast and the theme is safari. I will definately post pictures after Saturday's party. Charlie is doing good today. His neck is feeling tight again, but is hanging in there. He had his labs drawn today and has a follow up appointment tomorrow. We are expecting the doctors to admit him to the hospital on Monday. This round will be round three and will probably be a little harder than the past two, but we will see. I really want to thank everyone that has been helping our family through this time. The fundraisers that friends and family have been putting together is just amazing. Right now, Charlies good friend Cassie is hosting a fundraiser. If any of you are interested, the info is below. I can not upload the image of the canvas for sale, but if you click on the website you can check it out. Tickets are going fast so contact her if you are interested!
Im so happy that tomorrows Friday. We are so excited for little Charlie's birthday party on Saturday. Tonight we went out and bought all of the food. Me and Char are cooking a mexican feast and the theme is safari. I will definately post pictures after Saturday's party. Charlie is doing good today. His neck is feeling tight again, but is hanging in there. He had his labs drawn today and has a follow up appointment tomorrow. We are expecting the doctors to admit him to the hospital on Monday. This round will be round three and will probably be a little harder than the past two, but we will see. I really want to thank everyone that has been helping our family through this time. The fundraisers that friends and family have been putting together is just amazing. Right now, Charlies good friend Cassie is hosting a fundraiser. If any of you are interested, the info is below. I can not upload the image of the canvas for sale, but if you click on the website you can check it out. Tickets are going fast so contact her if you are interested!
fundraiser for charlie beck
24x36 canvas by local
“above the reef” photographer
josh gill
Photo selected by charlie beck
donation will include shippng cost
$10.00 donation
Paypal with email tickets will be set up for out of town donations. please contact cassie at cassandraruth77@msn.com or 805-717-4144
to view photo visit www.abovethereef.com under “empties” 2nd picture
Thursday, August 4, 2011
Day 55
Hi Everyone,
Not much going on today. Charlie has been having bad headaches lately and is still hanging in there. Tomorrow he will have to go to the lab and have some blood drawn. He will then have his follow up appointment with the oncologist on Friday. We are still waiting to know if there is a match in the registry. This could take a while. This is just a short update. I will post more later. Have a great Thursdsy!
Not much going on today. Charlie has been having bad headaches lately and is still hanging in there. Tomorrow he will have to go to the lab and have some blood drawn. He will then have his follow up appointment with the oncologist on Friday. We are still waiting to know if there is a match in the registry. This could take a while. This is just a short update. I will post more later. Have a great Thursdsy!
Wednesday, August 3, 2011
Day 54
Hi Everyone,
Hope you are all having a good week so far. Charlie went to the party store today and picked up stuff for little Charlies birthday. We are having a safari themed birthday for him this year. First birthdays are huge out here in Hawaii, but under the circumstances we will only have family over. It's too bad that Charlie will be in the hospital on his real birthday. Charlie has his follow up appointment this Friday and will know when he is going back. We are thinking that he will be going back next Monday. This round of chemo will be the same medication and regimen as the very first. Charlie isn't looking forward to going back. There isn't much going on right now. Charlie continues to have headaches and feels a lot of pressure in his head, but feels good other than that. Please continue to pray for healing for Charlie
Hope you are all having a good week so far. Charlie went to the party store today and picked up stuff for little Charlies birthday. We are having a safari themed birthday for him this year. First birthdays are huge out here in Hawaii, but under the circumstances we will only have family over. It's too bad that Charlie will be in the hospital on his real birthday. Charlie has his follow up appointment this Friday and will know when he is going back. We are thinking that he will be going back next Monday. This round of chemo will be the same medication and regimen as the very first. Charlie isn't looking forward to going back. There isn't much going on right now. Charlie continues to have headaches and feels a lot of pressure in his head, but feels good other than that. Please continue to pray for healing for Charlie
Monday, August 1, 2011
Day 53
Hi Everyone,
Hope you all had a fantastic Monday! I can't believe that it's already August. Christmas will be here before we know it. Char got out of the house today. He wants to get out once a day to get fresh air and do something enjoyable. Today Charlie, Brad, and little Charlie went to the north shore. They said it was a beautiful day and little Charlie loved it. Today Charlie had a headache, but wasn't too bad. I have to say that I had an emotional day. Some days hit me hard and I just freak out inside. I love Charlie so much that it's so hard to see him sick. He's a trooper though, he is truly a strong man! My prayer request is that a perfect match will be found for Charlie. We hope to know soon if anyone on the registry is a match. Please pray for this. Please pray for our family as well. We pray for comfort and understanding during this time and for encouragement. We know Charlie is going to get through this! I love the prayers and emails that we have been getting. We couldn't do this without the support! We love you all :)
Hope you all had a fantastic Monday! I can't believe that it's already August. Christmas will be here before we know it. Char got out of the house today. He wants to get out once a day to get fresh air and do something enjoyable. Today Charlie, Brad, and little Charlie went to the north shore. They said it was a beautiful day and little Charlie loved it. Today Charlie had a headache, but wasn't too bad. I have to say that I had an emotional day. Some days hit me hard and I just freak out inside. I love Charlie so much that it's so hard to see him sick. He's a trooper though, he is truly a strong man! My prayer request is that a perfect match will be found for Charlie. We hope to know soon if anyone on the registry is a match. Please pray for this. Please pray for our family as well. We pray for comfort and understanding during this time and for encouragement. We know Charlie is going to get through this! I love the prayers and emails that we have been getting. We couldn't do this without the support! We love you all :)
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