Hi Everyone,
I have been slacking on the blog! I wish I could keep up a little more, but things have been busy. Charlie has been home from the hospital since Thursday and has been doing ok. He has a cough that won't go away and can't catch any relief. Charlie has been very frustrated and would like just one day of relief. He is such a strong person and hanging in there. We are hoping that the City of Hope will call soon. Charlie does not want to go back for another round. This time they left Charlies PICC line in and has to flush it every 8 hours. It's pretty cool how the line works. Not too many updates at the time. We are just praying for that call and the perfect match. Please pray for Charlie and encouragement for him at this time. I will try to write more than I have been. Have a great Monday!
Sunday, August 28, 2011
Monday, August 22, 2011
Day 74
Hi Everyone,
I am so sorry for not writing, but these past days have been so hectic. I'm sure some of you have been worried. Charlie is doing good. He is now done with this round of chemo and is waiting now for his counts to go up. He is expected to be in here for another week. He has gotten updates about the possible bone marrow donors and could know if one is a match with in the next two weeks. Charlie is hanging in there and is doing the best he can. This is a short post, but will write more later. Good night
I am so sorry for not writing, but these past days have been so hectic. I'm sure some of you have been worried. Charlie is doing good. He is now done with this round of chemo and is waiting now for his counts to go up. He is expected to be in here for another week. He has gotten updates about the possible bone marrow donors and could know if one is a match with in the next two weeks. Charlie is hanging in there and is doing the best he can. This is a short post, but will write more later. Good night
Thursday, August 18, 2011
Day 70
Hi Everyone,
It's day 70 and it's almost the weekend. Tomorrow is little Charlies 1st birthday! I still can't believe he is going to be 1. Where has the time gone?? I have tomorrow off and will hopefully be bringing little Charlie to the hospital. We will see if Charlie is feeling ok and up to visit. Charlie is doing a little better today. He did have several vomiting episodes, but had an appetite tonight. He enjoyed some chicken long rice and lau lau for dinner and finished it with some chocolate ice cream. Hopefully his stomach agrees and can keep it down. Today Charlie had his interthecal procedure done and was the last one for this round. Charlie has one week left of chemo, and then one week of recovery. Right now we are praying for a perfect match to be found and hoping that a transplant is near. Charlie has been hanging in there and would really like the chemo process to be over. Please keep praying for him and for God to lay his healing hands upon him. We have faith and hope that his transplant will be soon. Thank you for the encouragement and uplifting words, we love you all!!
It's day 70 and it's almost the weekend. Tomorrow is little Charlies 1st birthday! I still can't believe he is going to be 1. Where has the time gone?? I have tomorrow off and will hopefully be bringing little Charlie to the hospital. We will see if Charlie is feeling ok and up to visit. Charlie is doing a little better today. He did have several vomiting episodes, but had an appetite tonight. He enjoyed some chicken long rice and lau lau for dinner and finished it with some chocolate ice cream. Hopefully his stomach agrees and can keep it down. Today Charlie had his interthecal procedure done and was the last one for this round. Charlie has one week left of chemo, and then one week of recovery. Right now we are praying for a perfect match to be found and hoping that a transplant is near. Charlie has been hanging in there and would really like the chemo process to be over. Please keep praying for him and for God to lay his healing hands upon him. We have faith and hope that his transplant will be soon. Thank you for the encouragement and uplifting words, we love you all!!
Wednesday, August 17, 2011
Day 69
Hi Everyone,
We are half way through the week and it marks week one for Charlie. Today is also his baby brothers birthday. Happy Birthday Jeff! We went to dinner tonight at a Mexican place in Koolina and had a good chocolate haupia pie at home. It sucked not having Charlie with us, but he will be home soon. He has two weeks left on the hospital. He is feeling much better today, but still feels sick and blah. His PICC line got unblocked and is working well now. He is hanging in there and is doing the best he can. This is just a short update, but will write more tomorrow. Have a great night!
We are half way through the week and it marks week one for Charlie. Today is also his baby brothers birthday. Happy Birthday Jeff! We went to dinner tonight at a Mexican place in Koolina and had a good chocolate haupia pie at home. It sucked not having Charlie with us, but he will be home soon. He has two weeks left on the hospital. He is feeling much better today, but still feels sick and blah. His PICC line got unblocked and is working well now. He is hanging in there and is doing the best he can. This is just a short update, but will write more tomorrow. Have a great night!
Tuesday, August 16, 2011
Day 68
Hi Everyone,
If there is one thing that I've learned in life, it's that life is not fair. Charlie is fighting the biggest battle of his life right now and it breaks my heart. I hate seeing someone I love so much in discomfort. I wish I could take away all of this pain and sickness. I have to say that I'm feeling sad today. I just have these moments where I feel the reality of it all and know that Charlie is very sick. Charlie is having a hard time with this round of chemo. These past two days Charlie has been very sick and umcomfortable. He hasn't been able to eat all day today and has had stomach discomfort for a couple days now. He still has fluid in his lungs which means he is not getting fluids through his PiCC line. He has been trying to drink water but feels very nauseated once he drinks. His PICC line is not cooperating right now as well. His line is blocked and is in the process of it getting unblocked as i speak.Please keep Charlie in your prayers. We are praying that the City of Hope calls soon and has a donor ready for Charlie. Please pray that he feels comfort and encouragement during these rough days. We love you all and thank you for the support!!
If there is one thing that I've learned in life, it's that life is not fair. Charlie is fighting the biggest battle of his life right now and it breaks my heart. I hate seeing someone I love so much in discomfort. I wish I could take away all of this pain and sickness. I have to say that I'm feeling sad today. I just have these moments where I feel the reality of it all and know that Charlie is very sick. Charlie is having a hard time with this round of chemo. These past two days Charlie has been very sick and umcomfortable. He hasn't been able to eat all day today and has had stomach discomfort for a couple days now. He still has fluid in his lungs which means he is not getting fluids through his PiCC line. He has been trying to drink water but feels very nauseated once he drinks. His PICC line is not cooperating right now as well. His line is blocked and is in the process of it getting unblocked as i speak.Please keep Charlie in your prayers. We are praying that the City of Hope calls soon and has a donor ready for Charlie. Please pray that he feels comfort and encouragement during these rough days. We love you all and thank you for the support!!
Monday, August 15, 2011
Day 66 and 67
Hi Everyone,
It's Monday and the beginning of another week. Charlie had a lousy day today. He woke up feeling very bloated and just a general blah feeling. He has a little cough and is still congested. This morning the doctor had him get a chest x ray done to check for possible pneumonia. The results came back with some fluid and was given some medicine to extract the fluid from his body. They arn't too concerned at this moment, but will keep an eye on it. Right now Charlie doesn't need pneumonia, he needs to be as healthy as possible. We are praying that the fluid and his cold will go away soon. Charlie was feeling really sick earlier. He threw up a couple times and didnt have much to eat today. Today just wasn't the greatest. They stopped his fluids right now until he gets his next dose of chemo tonight. Since his body is getting rid of all his fluids, he has been peeing like crazy. He has also been having pain in his kidneys and is taking morphine to control the pain. Please keep Charlie in your prayers and pray for Gods healing touch to be placed upon him. There are times that are discouraging, and today is one of them. We are trying to keep the faith and stay strong. We love you all. Have a great night!
It's Monday and the beginning of another week. Charlie had a lousy day today. He woke up feeling very bloated and just a general blah feeling. He has a little cough and is still congested. This morning the doctor had him get a chest x ray done to check for possible pneumonia. The results came back with some fluid and was given some medicine to extract the fluid from his body. They arn't too concerned at this moment, but will keep an eye on it. Right now Charlie doesn't need pneumonia, he needs to be as healthy as possible. We are praying that the fluid and his cold will go away soon. Charlie was feeling really sick earlier. He threw up a couple times and didnt have much to eat today. Today just wasn't the greatest. They stopped his fluids right now until he gets his next dose of chemo tonight. Since his body is getting rid of all his fluids, he has been peeing like crazy. He has also been having pain in his kidneys and is taking morphine to control the pain. Please keep Charlie in your prayers and pray for Gods healing touch to be placed upon him. There are times that are discouraging, and today is one of them. We are trying to keep the faith and stay strong. We love you all. Have a great night!
Saturday, August 13, 2011
Day 65
Hi Everyone,
Hope you are all enjoying your weekend so far. Today me and little Charlie went to a friends house and had a play date. He really enjoyed it and played well with the two girls. He is growing up way too fast!! Charlie is doing good today. He got a good nights rest last night and got some much needed sleep. He has been taking this round very well and will hopefully stay that way. He will start getting his Neuprogen shots on Thursday and will continue to get spinal taps every Friday. Right now we are playing a waiting game. We are hoping and praying this will be the last round of chemo for Charlie. He is hanging in there, but definitely wants to stop the chemo rounds. Not too many updates at this time. I want to thank everyone that reads the blog and prays for us. We really love and appreciate you all! Have a great Sunday :)
Hope you are all enjoying your weekend so far. Today me and little Charlie went to a friends house and had a play date. He really enjoyed it and played well with the two girls. He is growing up way too fast!! Charlie is doing good today. He got a good nights rest last night and got some much needed sleep. He has been taking this round very well and will hopefully stay that way. He will start getting his Neuprogen shots on Thursday and will continue to get spinal taps every Friday. Right now we are playing a waiting game. We are hoping and praying this will be the last round of chemo for Charlie. He is hanging in there, but definitely wants to stop the chemo rounds. Not too many updates at this time. I want to thank everyone that reads the blog and prays for us. We really love and appreciate you all! Have a great Sunday :)
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